When Bright Eyes has a bad day, he often looks like this. His face is slightly swollen, his eyes seem bleary. He's certainly not 'bright'. I wonder what makes this happen - I wish I had more answers and solutions without having to go on extreme diets. GF/CF is bad enough.
Showing posts with label intervention. Show all posts
Showing posts with label intervention. Show all posts
Monday, May 12, 2008
On a bad day...
When Bright Eyes has a bad day, he often looks like this. His face is slightly swollen, his eyes seem bleary. He's certainly not 'bright'. I wonder what makes this happen - I wish I had more answers and solutions without having to go on extreme diets. GF/CF is bad enough.
Thursday, September 20, 2007
I'm over it all today
Sorry about all the negative posts. But this is going to be another one.
I am just really tired of all of this.
Everything I do with him, I have to think so hard about. The smallest request can turn into the biggest confrontation in ten seconds unless I am supercareful.
He still won't eat properly. He's still in nappies. He still sleeps in our bed. He still talks all day about stuff that's in his own head. He bosses. He won't get on with his brother. His voice is loud and demanding and stressful.
When I change his nappy, he has to put the clean nappy over his head first, before putting it on. Then he has to put his pants on over his head before putting them on. If I miss a step he has an anxiety attack.
RDI is really great but it's challenging and tiring to have to change so much of what I do and how I speak and how I relate. I need to think so carefully all day about how things can work. Every time I get feedback from our fortnightly review, I think, "How can I do this better? How can I remember this all day tomorrow?"
I've never naturally been one of those people who loves little kids and all the messy stuff that goes with preschool. Small children are hard work for me. Looking after them doesn't give me energy like it does for some.
Yes, of course there are good things. He danced today when we put music on. He's using more appropriate language every week. Overall, he's improved amazingly in 9 months.
But I'm tired and I'm sick of it all today. And I'm having a big whinge.
I am just really tired of all of this.
Everything I do with him, I have to think so hard about. The smallest request can turn into the biggest confrontation in ten seconds unless I am supercareful.
He still won't eat properly. He's still in nappies. He still sleeps in our bed. He still talks all day about stuff that's in his own head. He bosses. He won't get on with his brother. His voice is loud and demanding and stressful.
When I change his nappy, he has to put the clean nappy over his head first, before putting it on. Then he has to put his pants on over his head before putting them on. If I miss a step he has an anxiety attack.
RDI is really great but it's challenging and tiring to have to change so much of what I do and how I speak and how I relate. I need to think so carefully all day about how things can work. Every time I get feedback from our fortnightly review, I think, "How can I do this better? How can I remember this all day tomorrow?"
I've never naturally been one of those people who loves little kids and all the messy stuff that goes with preschool. Small children are hard work for me. Looking after them doesn't give me energy like it does for some.
Yes, of course there are good things. He danced today when we put music on. He's using more appropriate language every week. Overall, he's improved amazingly in 9 months.
But I'm tired and I'm sick of it all today. And I'm having a big whinge.
Tuesday, July 31, 2007
School?
We dropped in to the Early Intervention Unit yesterday in Moss Vale. It's a service that provides intensive support to children with delays in various areas. It's kind of like preschool, but in miniature, with two staff to only eight children.
We're trying to work out what Bright Eyes is going to do next year and especially in terms of preparing for school in 2009.
The Early Intervention Unit looks great (and it's free!) but I have a feeling that Bright Eyes time would be better spent focusing on RDI.
I found the quote below from Dr Gutstein in this week's RDI newsletter:
"By having school take up all the the child's emotional and attentional resources we leave nothing for the most critical objective.
What we know is that unless we directly address the core areas of Autism Spectrum Disorder, the prognosis for quality of life is very poor.
Imagine if we were talking about cancer and someone said they were so busy with homework they had no time for chemotherapy."
We've got some decisions to make!
We're trying to work out what Bright Eyes is going to do next year and especially in terms of preparing for school in 2009.
The Early Intervention Unit looks great (and it's free!) but I have a feeling that Bright Eyes time would be better spent focusing on RDI.
I found the quote below from Dr Gutstein in this week's RDI newsletter:
"By having school take up all the the child's emotional and attentional resources we leave nothing for the most critical objective.
What we know is that unless we directly address the core areas of Autism Spectrum Disorder, the prognosis for quality of life is very poor.
Imagine if we were talking about cancer and someone said they were so busy with homework they had no time for chemotherapy."
We've got some decisions to make!
Subscribe to:
Posts (Atom)
